Arek Daniel



Personal data - diagnosis

Personal data

Visible name: Arek Daniel
Ctry: Australia
State/Province: NSW
Year of birth: 1965
Age: 54
Occupation: retired
Hobbies:
My Website:

Data at initial diagnosis

Date: 06.10.2006
Age at diagnosis: 41
PSA: 8.10
Biopsied? Yes
TUR-P? No
Gleason Score: 4 + 3 = 7b
TNM-Stages:
Remark:

Maximum measured prostate volume

Date: 21.11.2006
PSA: 9.10
Volume in ml or cm³:

Postoperative pathological data

Date:
Gleason Score: 3 + 4 = 7a
pTNM-classification:
Margins:
p-L-V-P-G-Findings:
See stories of:

Prostate cancer treatments

** PSA level at the start of the treatment
from to PSA** Type Clinic City
21.11.06 9.10 DaVinci Epworth Hospital Melbourne, Australia



Drugs

NEM = Nutritional supplement
from to Medication Quantity / unit of time
Quantity per D / M / Y etc.


PSA-History    ng/ml    logarithmic

PSA-History    ng/ml    linear

PSA doubling times in years

Doubling time is greater than previous period.
Doubling time is smaller than previous period.
* Calculated backwards for 1, 2, 4 and 8 periods.

Limit = 3 years


Calculation of doubling times in days

Doubling time in years:
Doubling time in days:
Date PSA 1* 2* 4* 8*
02.10.06 8.10
16.10.06 9.10 0.23
14.01.07 0.05 -- --
14.02.07 0.01 -- --
16.12.07 0.01 -- --
15.02.08 0.01 --
10.02.09 0.01 --
14.09.09 0.01
07.08.10 0.01 --
09.08.11 0.01 --
30.05.12 0.01 --
30.05.13 0.03 0.63 1.14 2.34 3.97
17.07.14 0.01 --
18.08.15 0.01 --
03.08.16 0.01
           
           
           
           
           
           
           
           
           
           
Date PSA 1* 2* 4* 8*
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           

My Story

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Date Δ 

Last PSA from

Personal stories

       
10.10.2006 8.10 02.10.06
I live in New South Wales, Australia. I was 41 when I was diagnosed on October 6, 2006. My initial PSA was 8.1 ng/ml, Gleason Score was 7 and he was staged T2b. My choice of treatment was robotic prostatectomy. Here is my story:

After having a dream about my prostate I've asked my GP about testing for prostate cancer.

I was told at 41 (and with no family history of prostate problems)I was still too young for DRE, but was offered PSA test next time I did a blood test.

Few weeks later decided to check my cholesterol level and my PSA came back at 8.1 ng/ml. DRE was performed and detected prostate enlargement.

I was refered to urologist, another DRE was performed and antibiotics prescribed.

Two weeks later PSA gone up to 9.1 ng/ml, so biopsy was performed. On the 6th of october 2006 I was informed that I have prostate cancer.
Robotic prostatectomy due on 21st November.
       
15.12.2006 9.10 16.10.06
I had my surgery on 21st November 2006 as planned at Epworth Hospital in Melbourne, Victoria. By Prof. A. Costello. Surgery went well & lasted just over 3 hours.

Recovered pretty good, but few hours later had quite severe bladder spasm. Painkillers were administered, but they made me very nauseous for the next 12 hours. Following day I felt much better, eating & walking without much problem. I was discharged from hospital on 23rd November and after spending one night in a hotel in Melbourne flew back home following day.

Surprisingly I had very little discomfort with catheter which was removed on 29th November. Over the next couple of days I had very little control over my bladder during the day, but stayed completely dry at night. Very quickly I regain the control & have been down to one pad a day for the past 10 days.

Found a fair bit of the blood in my urine about 10 days after surgery, but was informed it was quite normal and most likely caused by blood clots being expelled from my body. It has settled very quickly, within next few hours.

The wounds have healed very quickly, very little pain or discomfort, probably helped by occasional Panadol or Voltaren.

As far as erections go it is still very quiet, but I have managed to have a successful intercourse 18 days after surgery. Overall I am extremely happy with my progress. I believe it is due to skill of my surgeon, few weeks of Kegels & Chinese herbs /acupuncture prior to surgery.

As an added bonus, after the biopsy of prostate, my Gleeson score was downgraded from 4+3=7 to 3+4=7 and staging from T2b to T2a.
       
21.02.2008 0.01 15.02.08
Since December 2006 my recovery was proceeding very well. My first PSA test after surgery was <0.05. Huge relief. About two months after surgery I was pads free. I probably could've stop using them earlier, but did not have the confidence at the time.
The erections improved as well. I was using a pump for a few weeks, but found it bit cumbersome. I've also used Cialis and Levitra (supplied for free by my doctor in "sample packs") . Biggest help came from my wife, who was extremely understanding & supportive. I think I was very self conscious in the early days. Once I've overcome this, things returned to "normal" very quickly.

In February I had my second PSA test - <0.01.! I'd also noticed my urine flow started to decrease quite suddenly day by day. I contacted my urologist and two days later I had cystoscopy. Apparently I was healing "too well" and the scar tissue started closing my urethra. I was nearly fully blocked.

The procedure took 45 minutes. I was home two days later. Had to wear catheter for the next seven days. This was little bit more uncomfortable then catheter after initial surgery. After catheter was removed things returned to normal very quickly. The procedure did not seem to impact on continence at all. I was told that it was likely I might undergo this procedure in the future. What joy Next few months very pretty uneventful, until May.

My urine flow started to decrease yet again. After consultation with my urologist it was decided I needed another cystoscopy, this time bit more aggressive.

As before, I was home 2 days later. This time catheter was even more uncomfortable. I've also had more blood in my urine. Five days later my catheter appeared to have blocked due to the blood clot. Back to hospital, where it was removed. After overnight stay I went home without any problems. I wore pads for a couple of days, "just in case", but realized I didn't need them at all. I guess doing plenty of Kegel exercises was paying its dividends.

My following PSA tests (in May & August) came under 0.01 again.

In August I've underwent an inguinal hernia surgery on left side of my groin. I was warned that my happen. Apparently if you are prone to getting hernia robotic prostatectomy might accelerate this happening.

Since then everything has been going really well. My last (December 2007) PSA reading was under 0.01.
       
15.05.2009 0.01 10.02.09
Life been pretty good since my last update.

I fully recovered from inguinal hernia surgery. The incontinence issue has also been resolved - no more problems with the urethra scarring. No issues with ED either - everything is working perfectly.

My last PSA in February this year again came under 0.01.

Next PSA check is due in August.
       
20.09.2009 0.01 14.09.09
My last PSA in August came under 0.01 again. My specialist recommended I see my local GP from now on as there is no need for me to see him. Life is back to normal, no issues whatsoever.

Next on the agenda is weight loss - I've put few kilos on since surgery. Other then that life's good.
       
15.08.2010 0.01 07.08.10
Had my yearly blood test last week - my PSA is still under 0.01. I have no side effects whatsover with leakage or erections, everything is back to normal with no need for medications or further treatment. Life's good.
       
29.08.2011 0.01 09.08.11
I had my yearly PSA test this month - still under 0.01.
In November it will be 5 years since my surgery & everything is going fine.
       
15.05.2012 0.01 09.08.11
I had a full checkup last week & it included full blood works.
PSA is still 0.01.
Everything is going fine, life's good.
       
30.05.2013 0.03 30.05.13
Had a full blood check and my PSA is under 0.03 (I've used a different lab this time).
Everything is working as it should, no problems at all.
       
17.07.2014 0.01 17.07.14
Had my latest annual blood test & the news is still great - PSA under 0.01

Nothing else to report, all is well & working as it should.
       
20.08.2015 0.01 18.08.15
Had my annual blood test last week & no change from last year - PSA still under 0.01 - undetectable.

       
03.08.2016 0.01 03.08.16
Another year has passed so it's time for an update.

Had my yearly health check up and that included full blood test.

PSA came back under 0.01.

Life's great.