Phil



Personal data - diagnosis

Personal data

Visible name: Phil
Ctry: United States of America
State/Province: Az
Year of birth: 1962
Age: 56
Occupation:
Hobbies:
My Website:

Data at initial diagnosis

Date: 02.01.2017
Age at diagnosis: 54
PSA: 4.00
Biopsied? Yes
TUR-P? No
Gleason Score: 3 + 3 = 6
TNM-Stages:
Remark:

Maximum measured prostate volume

Date:
PSA:
Volume in ml or cm³: 50

Postoperative pathological data

Date:
Gleason Score:
pTNM-classification:
Margins:
p-L-V-P-G-Findings:
See stories of:

Prostate cancer treatments

** PSA level at the start of the treatment
from to PSA** Type Clinic City
03.01.17 4.00 Active Surveillance Memorial Sloan Kettering New York
18.06.18 18.06.18 3.90 other treatments MSK New York



Drugs

NEM = Nutritional supplement
from to Medication Quantity / unit of time
01.01.17 Plant Based Diet
14.01.17 Pomagranate Tabs 2/D
14.01.17 Vit C 2000/D
02.02.17 CBD Oil
01.03.17 Apricot Seeds/Vitamin B17 (Laetrile) 24/D
Quantity per D / M / Y etc.


PSA-History    ng/ml    logarithmic

PSA-History    ng/ml    linear

PSA doubling times in years

Doubling time is greater than previous period.
Doubling time is smaller than previous period.
* Calculated backwards for 1, 2, 4 and 8 periods.

Limit = 3 years


Calculation of doubling times in days

Doubling time in years:
Doubling time in days:
Date PSA 1* 2* 4* 8*
24.12.10 0.90
22.07.11 0.80 --
31.10.12 2.90 0.69 1.10
14.08.14 1.50 -- 3.38
17.01.15 3.30 0.38 11.88 2.17
15.04.15 7.60 0.20 0.29 1.15
04.05.15 1.90 -- -- --
04.01.16 4.60 0.53 -- 0.86
11.02.16 4.50 -- 0.62 2.39 2.21
07.10.16 4.60 20.65 -- 2.07
09.12.16 5.60 0.61 2.62 1.03 4.33
16.03.17 4.00 -- -- -- 1.83
17.06.17 4.40 1.85 -- -- 5.82
27.09.17 3.10 -- -- -- --
20.02.18 3.80 1.36 -- -- 2.80
18.06.18 3.90 8.62 2.18 -- --
           
           
           
           
           
           
           
           
           
Date PSA 1* 2* 4* 8*
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           
           

My Story

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Date Δ 

Last PSA from

Personal stories

       
28.03.2017 4.00 16.03.17
In 2009 I started Testosterone Replacement Therapy. My PSA was .06 in 2009. In three years it jumped to 2.9. I did not have a biopsy done until 2017 and was found to have Gleason score 6 PC. Needless to say, I now question if the therapy was the kickstart to my cancer, however they have no studies to prove that. One interesting read was in the Forbes Feb 27, 2017 where the man who mapped the human genome has found a possible genetic link between the number of androgen receptor repeats and the propensity of PC. Very interesting for sure. Anyway...

Met with Urologist and Radiology Oncologist from Memorial Sloan Kettering and they ordered an MRI. Based on these results we will determine next step of either Stereotactic Hypofractionated Accelerated Radiation Therapy (SHARP) or surgery to remove. They say both have similar side effects. Based on the location and placement of the nerves, I will make some decision since it appears that "Active Surveillance" is not the best option for someone in their 50s.
       
15.03.2018 3.80 20.02.18
Had my second biopsy on 3/5/18 at MSK. Although my PSA has dropped to 3.8 which was lower than prior to my first biopsy, the results came back that I was now at a Gleason score of 7. I am still very resistant to have radiation or have it removed yet, so I have decided to see if I can get into the TOOKAD Soluable clinical trial. More to come after my next MRI and appointment with one of the doctors involved in the trial.
       
18.06.2018 3.90 18.06.18
I was accepted into the vascular-targeted photodynamic therapy (VTP) clinical trail and had my treatment on 6.18.18. After 7 days of recovery I am feeling much better. Most of my issues were with bladder spasms and catheter issues, still feeling the burn.

I will be going back for a three month biopsy and that will be the test to determine if the cancer is gone. fingers crossed.

https://www.mskcc.org/blog/light-activated-drug-destroys-small-prostate-cancers-fewer-side-effects